Conversation – 18

@sheba2011

I fell asleep at the computer and awoke around 2:30 am.. The first thing I did was put the garbage and recycle out since we both do this every Thursday. Then returned and for some reason went to my post. I read Pookie’s note which was very, no, extremely uplifting. I now have an inkling, well, somewhat of an inkling of what my hubby has. Thankfully, there are things that can be tried and may bring him some relief and the removal of the catheter. Just have to find the right physicians and if there is one in Florida I will be a happy camper. If not, may grit my teeth and fly north with an appointment the same day we arrive. One thing Pookie has done is give me some hope and as long as I have that, then my mind will kick in to do the necessary research and to ask the questions that will really start the recovery process. Thankfully, everything right now is in working order, just not working together. I will keep you updated on how things are going, etc.. At least Pookie made me feel better and there may be a light at the end of this tunnel. And yes, it seems my hubby has the same symptoms as to what pookie described. And, the cause could be the many falls from bed and hitting his forehead a few times on the nightstand. And, falling out of bed, it’s only this bed, no other. Go figure……..

@pookie123

Thank you pookie for the information. Yes, the reading really helped. The Rehab is trying to make an appointment with an urologist for either Friday or Monday if possible. I gave them two choices with good ratings and the affiliation of the hospital that is up and coming and one other as well. I also realize that Florida does not have the best doctors and thankfully we still have a home up North. But, we need to start somewhere. Hopefully, between myself and the physicians along with the nurses we can stop the progression and when ready head to our other home and be closer to better medical care. And your help has also given me info that may have caused this problem in the long run. Thank you again for your help and yes, I do have a notebook and will begin using it for info and questions. Actually, it is something I started when hubby was hospitalized in Savannah. You have given me some hope and the knowledge that he may not need the catheter for the rest of his life. I will keep everyone updated on this thread. Now I need to check on the nephrologists.

Oodiebom, sorry you and your husband are suffering through this. Look up Neurogenic Bladder on the John Hopkins website. This will help you. Then look up stage 3 kidney disease. You are going to need a good Urologist and a very good Nephrologist. Unfortunately health care in Florida is not the best. I was diagnosed with stage 3 chronic kidney disease by a doctor and was told that there was nothing that could be done about it and it was my age. I left her office, went home and looked up every Nephrologist in my area. He sent me for additional tests and also told me that I did not have kidney disease, he could tell by looking at me. So, it turned out that there was nothing wrong with my kidneys and the first doctor was completely wrong after scaring the heck out of me. Don’t give up hope, start a notebook, and let the Medical Staff see you writing in it. Even if you aren’t writing anything specific, it catches their attention and they start paying a lot more attention to you. Have a list of questions you want answered every time you go. As far as your husband’s bladder goes, many years ago I had my bladder damaged during surgery. I was on a catheter for close to a year and a half. I had two failed bladder surgeries in attempts to correct what they did to me, then the third surgery finally worked. This was in Los Angeles and I had the “best” surgeon’s at Cedars-Sinai and the University of (I can’t remember the name of it, but I was sent there to the top surgeon in the Country, who “wrote the book” on bladder surgery. He performed the wrong surgery on me. You are going to have to take very good care of yourself so that you can stay on top of this. God willing his kidneys will be alright and he will be off that catheter in a couple of months if not sooner.

@xango,

You have your own little garden for the best veggies. I miss @71flowerchild she had great
veggies in Texas. 🌹✨

Enjoy your Créme Bruûlée. 💕🌹✨

@shoelady60,

Heidi did a great show with Adam Freeman. Lady as everyone in HSN Land and all Heidi Girls
know I have 100’s of pieces which I have shared on the Heidi Daus Thread.

Heidi Daus is like chips you can’t eat just one I can have a thousand pieces and I am always
finding something different and amazing Heidi is fantastic😘💕

@oodiebom,

I am so sorry really I am. I am trying to wrap my head around what they told you.
If it is not cancer what is it. I am sure you will get to the bottom of it.

Oodie I just wish you had family or close friend there. Cry if you want you will feel better.
So much for one person to do alone I hate it. ✨

I am very concerned about him and you.

Saying a prayer for both of you. 😘💕🌹Oodie please let me know how things are going.

@taci,

Our Heidi Daus did a great job with Adam Freeman and it was just like ole times again.
Taci Heidi is on tomorrow too. I have posted the time on the Heidi Daus Thread.

I am so sorry for your roof problems and weather well shizzle! ✨

Hubs and son both had Jury Duty in different States. I know they will be after me next.

I am very sad to see both Shannon leave HSN. 🌹

@sheba2011

Well, got some answers today and I’m still trying to plow through. Hubby has some kidney and bladder issues that will not go away in time. Seems the brain, the bladder and the kidneys are not working together as they should. He is now at the 3rd stage. It looks like the catheter will be permanent which means that some of the things he really enjoys, he may want to do. I guess I am hoping for a miracle which may not be there. The staff at rehab are hoping that there is something that the urologist can do, but, not sure what. And yes, part of this could have been avoided if the hospital staff had done their part. So now I told t hem that the physician must be affiliated with the other hospital as well. And, both the social worker and the head nurse agreed. They were not thrilled with the hospital hubby was admitted to, but because of the severity of the case, they would and could not drive to the other one which was 11 miles from our home and the other 4 miles. Again, not sure of what is going on. Suffice to say it isn’t good. And, the sad part is he thinks he needs to go to the bathroom. Again, not sure what is going on or how I can help him through this. I haven’t shed a tear as yet. I still have more questions than answers. We know it’s not a bacterial infection nor is it cancer. Still devastating prognosis.

Shannon Fox is leaving HSN. 🌹

Hello Sheba, i know who you watched today. How was it? I missed out but we had another house issue, thought the garbage disposal stopped working so I cleared out the entire area and then hubs got it working so re-organized it. The tarps blew to the side last night, and had to get them back in place. Yes, you know who went back up there. It rained briefly this afternoon and was cold and crisp. Great weather for us.
My SB bag shipped (wow fast) from CA and should be here in 2 days. I didn’t expect it but am very happy, And guess who get the letter…. no not from HSN (haha) but from the courts. Yup, Jury Duty. It’s not for a while.

Wouldn’t It Be Loverly – My Fair Lady

It’s rather dull in town, I think I’ll take me to Paris
The missus wants to open up the castle in Capri
Me doctor recommends a quiet summer by the sea, hmm, hmm
Wouldn’t it be loverly?
All I want is a room somewhere
Far away from the cold night air
With one enormous chair
Oh, wouldn’t it be loverly?
Lots of chocolate for me to eat
Lots of coal makin’ lots of heat
Warm face, warm hands, warm feet
Oh, wouldn’t it be loverly?
Oh, so lovely sittin’ abso-bloomin’-lutely still
I would never budge till spring
Crept over the windowsill
Someone’s head resting on my knee
Warm and tender as he can be
Who takes good care of me
Oh, wouldn’t it be loverly
Loverly, loverly, loverly, loverly
All I want is a room somewhere
Far away from the cold night air
With one enormous chair
Oh wouldn’t it be loverly?
Lots of chocolate for me to eat
Lots of coal making lots of heat
Warm face, warm hands, warm feet
Oh, wouldn’t it be loverly?
Oh, so lovely sitting abso-bloomin’-lutely still
I would never budge till spring
Crept over me windowsill
Someone’s head resting on my knee
Warm and tender as she can be
Who takes good care of me
Oh, wouldn’t it be loverly?
Loverly, loverly, loverly
Oh, wouldn’t it be loverly
Loverly, loverly, loverly, loverly